“I was diagnosed with a congenital condition called Chiari Malformation at age 16.” says Jennifer Lake, an UP community member since 2014.
“For seven years, I was sick without any idea of why. And, it turned out that this Chiari Malformation had been the answer all along. Sometime throughout the seven years between diagnosis and treatment, I developed a secondary problem. My cranio-cervical junction had become unstable, allowing my second vertebrae to migrate upwards and backwards, compressing my brain stem. Essentially, my skull had begun to slip back and forth on my spine. The doctors sat me down and said, ‘You’re going to need brain surgery.”More